Moonrise: One Family, Genetic Identity, and Muscular DystrophySt. Martin's Publishing Group, 22 apr. 2014 - 256 pagini Moonrise is Penny Wolfson's first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of "wrongness," takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life. |
Alte ediții - Afișează-le pe toate
Moonrise: One Family, Genetic Identity, and Muscular Dystrophy Penny Wolfson Previzualizare limitată - 2004 |
Moonrise: One Family, Genetic Identity, and Muscular Dystrophy Penny Wolfson Previzualizare limitată - 2003 |
Moonrise: One Family, Genetic Identity, and Muscular Dystrophy Penny Wolfson Nu există previzualizare disponibilă - 2004 |